A video describing how one parent felt when they were first told their child’s diagnosis

This video is based on my own feelings when my son finally received a diagnosis after 4 years of waiting. I realise not everyone will feel the same way that I did that day. This is quite a personal video to me, maybe some parents will be able to relate.

The words in the video are taken from my post Diagnosis feelings:


We saw the GP, we waited.

We saw the Paediatrician, we waited.
We saw another Paediatrician, we waited.
We saw CAMHS, we waited.
CAMHS went into my child’s school. We waited.
My child saw CAMHS, we waited.

Now I am sat in a room at CAMHS about to be told something I have waited so long to hear, yet not really wanting to hear it.

I even know exactly what they are going to say, I’ve known for years.
But knowing something and having someone tell you something about your child are two entirely different things.

Suddenly it’s official. The words leave their mouth and you can never wish them back in.

I know my child needs this. I know help is limited without it. I know school will be hard unless there is a piece of paper with it on but at the same time I can’t help letting the suddenly very real words stab a little at my insides.

The years of waiting impatiently and constantly asking for help, the relief I am finally here mixed with the feelings of what next? The worry of what the future will bring.

The half answered questions going in one ear and out of the other as the words ring around my head.

“Your child has Autism Spectrum Disorder”.

So I leave, my head full of questions, not really knowing what next with many years to still muddle through.

My heart is heavy and light at the same time. Relief. Pain. Confusion. Happiness. Sadness. Everything in between.

Everything has changed because of today, yet nothing is really different.

I love you, my autistic child, for the person you are and I love you exactly the way you are. A diagnosis won’t change that.

This video is based on my own feelings when my son finally received a diagnosis after 4 years of waiting. I realise not everyone will feel the same way that I did that day. This is quite a personal video to me, maybe some parents will be able to relate.
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One Comment Add yours

  1. fatamsimth says:

    Thanks for sharing. I actually just send an email to some friends about recommending that they have their son tested. It was hard to do, but no one ever expressed their concern with us. I guess they were afraid.

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