It’s not always easy being the parent of an autistic child. There are times in my life, especially times fighting for EHC Plans and schools, where I have not slept, where I have struggled and where it has felt like the biggest mountain on earth to climb.
There have been times where I have felt helpless and wanted more than anything in the world to help my child and couldn’t do anything but watch his meltdowns. There have been many times I have spent hours getting my children to bed and had about three hours sleep myself. There are times people have stared or been rude or misinterpreted situations. There are times I have had to cut down on my work to be there for my kids. There have been many times I have had to force my children to go to school and leave them there terribly upset, hearing them scream as I walked away. I could go on and on, I’m not going to lie, its hard! But in it all I have always dealt with it bit by bit, looked for and found the positives!
Whether you are in the middle of a fight for education or support, looking after a child that is self harming or suicidal or struggling in your relationship because you don’t get time for each other. Or for any other reason. This message is for all the parents out there finding it tough.
The words from the video are:
Remember there is only one way to eat an elephant, a bite at a time – Desmond Tutu
In every negative is a positive, you just have to find it.
To the parent sat on their childs bedroom floor watching helplessly as they scream, cry and bang their head saying they want to die.
To the parent who hasn’t slept for more than three hours in a row for as long as they can remember…getting up one more time.
To the parents that hardly talk anymore, too drained they can’t even cry.
To the parent that had to give up work long ago to home school, and watched all their friends move on without them.
To the parents that are called every name under the sun, trying not to react or show how much it hurts.
To the parents that walk away from the school gates, leaving their child to cry.
To the parents going alone with no help at all.
To the parents feeling like they cant carry on, that it never ends, that they are helpless.
Please remember that you are not alone.
You are doing a brilliant job. You can be strong. Take a minute to believe in yourself.
Take each day as it comes. Pat yourself on the back for conquering the small things.
Remember that there is a positive hiding in every negative. You just have to find it!
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